Partnering with Patient Organizations
At Hansa, we recognize the vital role patient advocacy groups (PAGs) play in advancing healthcare and supporting people with rare immunologic conditions. By partnering with non-profit PAGs and other non-profit organizations engaged directly or indirectly in healthcare and the support of patients Hansa aims to foster a more patient-centric approach to drug development, access and education. We are committed to fostering meaningful partnerships that empower patients and catalyze positive change. Together, we can make a difference in the lives of patients.
Our partnerships with patient advocacy organizations is guided by three fundamental principles:
- Independence: We respect the autonomy of patient advocacy groups and collaborate with them as equal partners.
- Respect and clarity of purpose: We value the perspectives and contributions of patient advocates. We actively listen, engage in open dialogue, and treat each other with respect.
- Transparency: Transparency is essential. We disclose any financial support provided to patient advocacy organizations.
The table below outlines the funding we provided to patient advocacy groups in 2023.
Organization | Country | Purpose | Amount |
---|---|---|---|
American Association of Kidney Patients | USA | Sponsorship of annual meeting and corporate membership | 25,000 USD |
American Kidney Fund | USA | Advocate Level Corporate Membership | 10,000 USD |
American Kidney Fund | USA | Sponsorship of The Hope Affair Gala Dinner and CEO meeting | 9,500 USD |
ANED | Italy | Support for raising awareness amongst patients on high sensitisation in kidney transplantation | 20,000 EUR |
EKHA Europen Kidney Health Alliance | Belgium | Support for EKHA's activities including the EU Kidney Forum, the EKHA Newsflash, the EKHA Working group and EKHA Network Event | 30,000 EUR |
Kidney Research UK | UK | Supported the creation and publication of the 'Driving change – Report on the Health Economics of Kidney Disease in the UK' | 20,000 GBP |
Renaloo | France | Support Renaloo's follow up actions and participation in the deployment of Transplant Plan Phase 1 to Phase 4 that ends in 2026 | 20,000 EUR |